ALS Society

of Manitoba


La Société

Manitobaine de la SLA

ALS Canadian Alliance Patient/Caregiver Canada Wide Information Forum

Information Forum

Do you, or someone you know have a connection to ALS? Are you a caregiver to someone with ALS? Check out these information forums to gain valuable knowledge and insight.

Register Below for the Upcoming Forum

Information Forum

Hosted by the International Alliance of ALS/MND Associations

Date:  Wednesday, April 24th

Time:  8am (Central Time)

Join us on April 24th for our webinar, Mental Health in ALS offered by the International Alliance of ALS/MND Associations. We will learn how to take care of our mental health, how to process our emotions, and how to foster motivation and other activities that bring happiness.

This webinar will provide tools and recommendations for People living with ALS/MND, their caregivers and youth. We will learn how to take care of our mental health upon diagnosis, how to deal with our emotions like guilt and anxiety. And how to drive motivation and other activities that will provide happiness and enjoyment.


Not sure if you can attend? Register anyway. The recording will be available for you to watch at your convenience afterwards.


12PM – Welcome and introduction of the ALS Canadian Alliance

12:05 – ALS patient testimonial – Living my best life with ALS

            Paula Trefiak, Saskatchewan

            Mike & Carmen Cels, Ontario

12:25 – Care options to manage symptoms – Dr Andrew Eisen

12:35 – Overview of approved therapies for ALS

            Riluzole – Dr Erik Pioro

            Oral Suspension of Edaravone – Dr Colleen O’Connell

           Albrioza and Tofersen – Dr Theodore Mobach

 1:15 – Questions and answers

 1:45 – Adjourn

Hosted by the ALS Canadian Alliance

03.21.2024 - Information Forum

The ALS Canadian Alliance Patient/Caregiver Forum, held virtually via Zoom on March 21st, provided a platform for individuals affected by ALS to gather and share experiences. Paula Trefiak from Saskatchewan and Mike & Carmen Cels from Ontario delivered heartfelt testimonials, shedding light on their journey titled “Living my best life with ALS”. Dr. Andrew Eisen delved into various care options aimed at managing symptoms effectively. Moreover, attendees gained insights into the landscape of approved therapies for ALS through discussions led by experts such as Drs. Erik Pioro, Colleen O’Connell, and Theodore Mobach, covering topics including Riluzole, Edaravone Oral Suspension, Albrioza, and Tofersen. The forum concluded with an interactive Q & A session, fostering a sense of community and support among participants facing the challenges of ALS.

Hosted by the ALS Canadian Alliance

11.16.2023 - Information Forum

This forum, hosted by ALS Canadian Alliance, was held Thursday, November 16th, 2023. If you couldn’t make it to the live event or would like to rewatch it, you can find it below.

In the session, you will find information for patients and caregivers on critical topics such as:

  • Frontotemporal Dementia
  • the Canadian Neuromuscular Disease Registry
  • Strategies for Coping
  • Self-Care
  • Medical Assistance in Dying (MAID)
  • plus more…

Tune in to hear from expert speakers Dr. Sultan Darvesh, Katie Henley, Dr. Elizabeth Bannerman, and Dr. Wendy Johnston.