Amyotrophic Lateral Sclerosis (ALS) otherwise known as Lou Gehrig’s Disease or Motor Neuron Disease (MND) is a fatal, rapidly progressive neuromuscular disease that affects approximately 3,000 Canadians and more than 350 Manitobans.

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Our website is intended to offer comprehensive information about ALS/MND, about the ALS Society of Manitoba, information for people with ALS/MND and their caregivers, health care professionals, donors, media, and the general public. It is our hope that this site be a source of meaningful information, a site that connects people both from within and outside the ALS/MND community and a site that users visit regularly. Be sure to let us know if there is a way to improve this site, and make it more user friendly. We want to know! Call us at (204) 831-1510 or e-mail HOPE@alsmb.ca

ALS/MND News

June is ALS Awareness Month/ 2019 Flag Raising Ceremony. The 2019 ALS Flag Raising Ceremony was held on Tuesday June 4th, at City Hall, officially kicking off June, #ALSAwarenessMonth. Deputy Mayor Marcus Chambers and Diana Rasmussen, Executive Director for ALS Society of Manitoba spoke at this symbolic ceremony, honouring people living with ALS and helping to spread awareness about programs and services available in Manitoba. Learn more

Can the key to slowing ALS progression be found in the immune cells of the brain? Learn more

Biogen to present new interim data from its phase 1/2 clinical study of Tofersen (BIIB067) for the potential treatment of a subtype of familial Amyotrophic Lateral Sclerosis (ALS). May 1, 2019. Read News Release.

Can antibodies help diagnosis ALS faster? Current methods for diagnosing ALS can take up to two years and rely heavily on ruling out other conditions that share similar signs and symptoms. It is believed that by the time ALS is diagnosed, therapies may be less effective as the damage to neurons is too extensive. Therefore, a better way of diagnosing ALS earlier is desperately needed. Learn more.

Pimozide for ALS: A Cross-Canada Clinical Trial Recruiting Now. A Phase 2 clinical trial is now recruiting at multiple sites across Canada to test whether treatment with a drug called pimozide slows the progression of ALS in humans. Learn more.

ALS Research Update | March 2019. Review the first 2019 ALS Research update, which summarizes the latest discoveries and advances in ALS/MND. The topics included in this update are: Researchers identify a potential new biomarker and drug target for ALS; How artificial intelligence is helping researchers to better understand ALS; Could a drug previously approved to treat hepatitis be successful in treating ALS?; Insights from the body’s natural immune response open up new treatment avenues for ALS; and Positive results from preclinical studies of a gene therapy for ALS and FTD.

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2019 Manitoba Caregiver Recognition Day

April 2, 2019. On the first Tuesday of April, Manitobans came together to recognize family members, friends, neighbours, and other significant people who take on a caring role to support someone with a diminishing physical ability, a debilitating cognitive condition or a chronic life-limiting illness. Known as Manitoba Caregiver Recognition Day, this special day encourages to pay tribute and recognize the valuable contribution of family caregivers to our lives and our community as a whole. Click here to read more.

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Call us at 204-831-1510 or email HOPE@alsmb.ca