ALS Society
of Manitoba
La Société
Manitobaine de la SLA
ALS Supports & Workshops
Do you, or someone you know have a connection to ALS? Are you a caregiver to someone with ALS? Check out these information forums to gain valuable knowledge and insight.
Living with a Life -Limiting Illness: Access to Care and Related Experiences Survey
The purpose of this national study is to better understand your health care access and experiences. The results may identify areas for improvement to enhance the quality of care for people with serious illnesses across Canada.
Your participation is safe and secure. Please submit your completed online questionnaire as soon as possible: www.statcan.gc.ca/LLLI-ACRE
Survey is valid October 8, 2024 to January 31, 2025
Sponsored by the UCiM Pastoral Care Committee
Date: Saturday, October 26th
Time: 10:00 am – 2:00 pm
Location: United Church in Meadowood, 1111 Dakota Street, Winnipeg, MB
Caring for the Caregiver – Free In-Person Workshop
Join us at the United Church in Meadowood for “Caring for the Caregiver,” a special in-person workshop designed for caregivers and those who support them. This insightful event will explore important topics such as Caregiver Fatigue, What Caregivers Need, and Self-Care to help participants navigate the challenges of caregiving with greater resilience. Engage in meaningful conversations, connect with others who understand your journey, and take home valuable resources.
Lunch and a snack will be provided. Registration is required at ucim.org. This event is proudly sponsored by the UCiM Pastoral Care Committee. We look forward to seeing you there!
Hosted by the International Alliance of ALS/MND Associations
Register Below for the Upcoming Forum
Date: Wednesday, April 24, 2024 (This event has concluded)
Time: 8am (Central Time)
Join us on April 24th for our webinar, Mental Health in ALS offered by the International Alliance of ALS/MND Associations. We will learn how to take care of our mental health, how to process our emotions, and how to foster motivation and other activities that bring happiness.
This webinar will provide tools and recommendations for People living with ALS/MND, their caregivers and youth. We will learn how to take care of our mental health upon diagnosis, how to deal with our emotions like guilt and anxiety. And how to drive motivation and other activities that will provide happiness and enjoyment.
Not sure if you can attend? Register anyway. The recording will be available for you to watch at your convenience afterwards.
Agenda
12PM – Welcome and introduction of the ALS Canadian Alliance
12:05 – ALS patient testimonial – Living my best life with ALS
Paula Trefiak, Saskatchewan
Mike & Carmen Cels, Ontario
12:25 – Care options to manage symptoms – Dr Andrew Eisen
12:35 – Overview of approved therapies for ALS
Riluzole – Dr Erik Pioro
Oral Suspension of Edaravone – Dr Colleen O’Connell
Albrioza and Tofersen – Dr Theodore Mobach
1:15 – Questions and answers
1:45 – Adjourn
Hosted by the ALS Canadian Alliance
03.21.2024 - Information Forum
The ALS Canadian Alliance Patient/Caregiver Forum, held virtually via Zoom on March 21st, provided a platform for individuals affected by ALS to gather and share experiences. Paula Trefiak from Saskatchewan and Mike & Carmen Cels from Ontario delivered heartfelt testimonials, shedding light on their journey titled “Living my best life with ALS”. Dr. Andrew Eisen delved into various care options aimed at managing symptoms effectively. Moreover, attendees gained insights into the landscape of approved therapies for ALS through discussions led by experts such as Drs. Erik Pioro, Colleen O’Connell, and Theodore Mobach, covering topics including Riluzole, Edaravone Oral Suspension, Albrioza, and Tofersen. The forum concluded with an interactive Q & A session, fostering a sense of community and support among participants facing the challenges of ALS.
Hosted by the ALS Canadian Alliance
11.16.2023 - Information Forum
This forum, hosted by ALS Canadian Alliance, was held Thursday, November 16th, 2023. If you couldn’t make it to the live event or would like to rewatch it, you can find it below.
In the session, you will find information for patients and caregivers on critical topics such as:
- Frontotemporal Dementia
- the Canadian Neuromuscular Disease Registry
- Strategies for Coping
- Self-Care
- Medical Assistance in Dying (MAID)
- plus more…
Tune in to hear from expert speakers Dr. Sultan Darvesh, Katie Henley, Dr. Elizabeth Bannerman, and Dr. Wendy Johnston.